Brookie the Brave; Reflections on Motherhood: Getting Legit

Saturday, August 9, 2014

Getting Legit

Brookie the Brave is going online for reals! A new website, linked to this blog coming soon! Brookie is becoming popular, website coming soon at www.brookiethebrave.com.

Follow our adventures and have fun with us! See you soon!
Also follow Team Brookie on Pinterest under mom4jules, Instagram @mom4jules. Thanks friends!

4 comments:

AnonymousAugust 9, 2014 at 5:19 PM
Congrats on the new site - it looks great! XO
Voted for you on TMB!

~ Valerie
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We are all "SPECIAL"August 9, 2014 at 6:18 PM
So proud of all your hard work friend!!
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We would love to here from Brookie the Brave followers! Sharing our joy makes this road a little easier..

Aicardi-what?

When Brookie was 5 weeks old she was diagnosed with a life threatening, non curable disease called Aicardi Syndrome. It was a hard time in our lives but we have accepted it, embraced it, and are loving the life lessons we learn with her along the way. What is Aicardi Syndrome? In short, Aicardi syndrome is a rare genetic neurological syndrome characterized by the partial or complete absence of a key structure in the brain called the corpus callosum, the presence of retinal abnormalities, seizures, global developmental delays, cerebral palsy and scoliosis. While all of this sounds super scary, Brookie is a thriving little girl despite her disabilities. Always a baby, she will be very delayed developmentally, but spiritually she is a strong shining light. Brookie has taught us to remember what is truly important and to look for the silver lining in the clouds on dark days. Though are lives were changed forever, it has been for the best. We love our little sunshine!